Loving unconditionally children with autism support network


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The LUCAS Network

Loving Unconditionally Children

with Autism Support Network

Derrick and Sandrine Howle

203 Biscayne Drive

Greenville, SC 29615

864-292-6116

luluhowle@charter.net

www.luluhowle.com

http://health.groups.yahoo.com/group/LUCASNetwork/
LOVING UNCONDITIONALLY CHILDREN WITH AUTISM SUPPORT NETWORK

L.U.C.A.S. Network
SC AUTISM SERVICES DIRECTORY

The LUCAS Network maintains the Autism Services Guide for SC as a service to families as a reference tool. Every effort is made to ensure listings are up-to-date. Lucas Network does not endorse or claim to have personal knowledge of the abilities of those listed. The resources listed in this document are not intended as an endorsement by the LUCAS Network of any resource or as a tool for verifying the credentials, qualifications, or abilities of any organization, product or professional. Users are urged to use independent judgment and request references when considering any resource associated with diagnosis or treatment of autism, or the provision of services related to autism.

LUCAS Network Autism Service Directory Outline


  1. Ryan’s Law Page 6




  1. SC PDD Waiver Program Page 12




  1. State Autism Agencies Page 22

  • SCDDSN

  • SCDHHS

  • Tefra

  • Babynet

  • Community Long Term Care (Personal Care Assistant)




  1. County Autism Agencies Page 27




  1. State Non-Profit Autism Organizations Page 34




  1. Diagnostic Services Page 35




  1. Therapy Service Providers (OT, Speech, and/or PT) Page 38




  1. ABA Therapy Providers in SC Page 43




  1. ABA Providers certified by DDSN for the PDD Waiver Page 47




  1. Doctors Page 77

  • Pediatricians

  • Developmental Pediatricians

  • GFCF Diet Doctors




  1. Dentists Page 81




  1. Ophthalmologists Page 86




  1. AIT Providers Page 87




  1. Schools for Children with Autism Page 88




  1. Daycare/Childcare/Babysitters Page 90




  1. Autism Friendly Churches and Places of Worship Page 92




  1. Center for Disability Resources Library Page 95




  1. Sport activities for Special Needs Children Page 96




  1. Parent/Child Advocates Page 97




  1. Special Needs Attorneys Page 98




  1. Financial Services Page 104




  1. Horseback Riding Therapies Page 105




  1. Therapy Dogs Page 107




  1. Music Therapies Page 108




  1. Autism Friendly Restaurants Page 109




  1. Food Supplements and Autism Therapy Supplies Page 111




  1. Hair Cutters Page 113




  1. Support Groups Page 114




  1. Social Groups for Individuals with Autism Page 118




  1. Counseling services and/or social skills training Page 119




  1. Summer, Day and Weekend Camps for Children with Autism Page 120




  1. Teenage and Adults with Autism Services Page 121




  1. Special Needs Adult Employment Resources Page 124




  1. Books to read Page 127




  1. National Autism Associations Page 129




L.U.C.A.S. Network (Loving Unconditionally Children with Autism Support Network) was created in 2007 by Derrick and Sandrine Howle in honor of our son, Lucas, who has autism. We developed a network of parents to help Lorri Unumb, Marcella Ridley, and Lisa Rollins’ (The SC Angels of Autism) two year effort to get Ryan’s Law passed in SC. Through correspondence with many of these families during and after the successful passage of Ryan’s Law in June of 2007, we felt compelled to share our story and experiences of Lucas’ battle with autism with other families in hope of making a difference in the lives of families suffering from this disorder and of making these families battle a little easier.

The creation of this Autism Services Directory is meant to be a guide to families across SC in search of the different services available to the autism community. We have included as many service providers as we can. Most have been recommended by families across SC. Users are urged to use independent judgment and request references when considering any resource associated with diagnosis or treatment of autism, or the provision of services related to autism.

We hope that you find this directory helpful and we will update it as more recommendations become available or changes need to be made. Your feedback and requests concerning this directory is greatly appreciated. We also request more information from the other areas of SC. We are located in the Upstate and a majority of the members of LUCAS Network are located in this area so we are relying on those of you from the Pee Dee area, Rock Hill Area, Lowcountry area, Midlands, Grandstrand, and Savannah River Area to send us your service provider recommendations as well.

Sandrine & Derrick Howle

Loving Unconditionally Children with Autism Support Network

(L.U.C.A.S. Network)

203 Biscayne Dr

Greenville, SC 29615

Home # (864) 292-6116

Cell # (864) 325-5507

www.luluhowle.com

January 2, 2018

Ryan’s Law
The text of Ryan's Law
AN ACT TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING SECTION 38-71-280 SO AS TO REQUIRE HEALTH INSURANCE COVERAGE, INCLUDING COVERAGE UNDER THE STATE HEALTH PLAN, FOR AUTISM SPECTRUM DISORDER AND TO DEFINE "AUTISM SPECTRUM DISORDER" AS AUTISTIC DISORDER, ASPERGER'S SYNDROME, AND NOT OTHERWISE SPECIFIED PERVASIVE DEVELOPMENTAL DISORDER.

Be it enacted by the General Assembly of the State of South Carolina:

Coverage required for autism spectrum disorder

SECTION 1. Article 1, Chapter 71, Title 38 of the 1976 Code is amended by adding:
"Section 38-71-280.

(A) As used in this section:

(1) 'Autism spectrum disorder' means one of the three following disorders as defined in the most recent edition of the Diagnostic and Statistical Manual of Mental Disorders of the American Psychiatric Association:

(a) Autistic Disorder;
(b) Asperger's Syndrome;
(c) Pervasive Developmental Disorder - Not Otherwise Specified.

(2) 'Insurer' means an insurance company, a health maintenance organization, and any other entity providing health insurance coverage, as defined in Section 38-71-670(6), which is licensed to engage in the business of insurance in this State and which is subject to state insurance regulation.

(3) 'Health maintenance organization' means an organization as defined in Section 38-33-20(8).

(4) 'Health insurance plan' means a group health insurance policy or group health benefit plan offered by an insurer. It includes the State Health Plan, but does not otherwise include any health insurance plan offered in the individual market as defined in Section 38-71-670(11), any health insurance plan that is individually underwritten, or any health insurance plan provided to a small employer, as defined by Section 38-71-1330(17) of the 1976 Code.

(5) 'State Health Plan' means the employee and retiree insurance program provided for in Article 5, Chapter 11, Title 1.

(B) A health insurance plan as defined in this section must provide coverage for the treatment of autism spectrum disorder. Coverage provided under this section is limited to treatment that is prescribed by the insured's treating medical doctor in accordance with a treatment plan. With regards to a health insurance plan as defined in this section an insurer may not deny or refuse to issue coverage on, refuse to contract with, or refuse to renew or refuse to reissue or otherwise terminate or restrict coverage on an individual solely because the individual is diagnosed with autism spectrum disorder.
(C) The coverage required pursuant to subsection (B) must not be subject to dollar limits, deductibles, or coinsurance provisions that are less favorable to an insured than the dollar limits, deductibles, or coinsurance provisions that apply to physical illness generally under the health insurance plan, except as otherwise provided for in subsection (E). However, the coverage required pursuant to subsection (B) may be subject to other general exclusions and limitations of the health insurance plan, including, but not limited to, coordination of benefits, participating provider requirements, restrictions on services provided by family or household members, utilization review of health care services including review of medical necessity, case management, and other managed care provisions.

(D) The treatment plan required pursuant to subsection (B) must include all elements necessary for the health insurance plan to appropriately pay claims. These elements include, but are not limited to, a diagnosis, proposed treatment by type, frequency, and duration of treatment, the anticipated outcomes stated as goals, the frequency by which the treatment plan will be updated, and the treating medical doctor's signature. The health insurance plan may only request an updated treatment plan once every six months from the treating medical doctor to review medical necessity, unless the health insurance plan and the treating medical doctor agree that a more frequent review is necessary due to emerging clinical circumstances.

(E) To be eligible for benefits and coverage under this section, an individual must be diagnosed with autistic spectrum disorder at age eight or younger. The benefits and coverage provided pursuant to this section must be provided to any eligible person under sixteen years of age. Coverage for behavioral therapy is subject to a fifty thousand dollar maximum benefit per year. Beginning one year after the effective date of this act, this maximum benefit shall be adjusted annually on January 1 of each calendar year to reflect any change from the previous year in the current Consumer Price Index, All Urban Consumers, as published by the United States Department of Labor's Bureau of Labor Statistics."

Time effective

SECTION 2. This act takes effect July 1, 2008, and applies to health insurance plans issued, renewed, delivered, or entered into on or after this act's effective date.
Ryan’s Law for Dummies- A simplified way to understand what it covers:
Ryan's Law passed on June 7, 2007, and it went into effect on July 1, 2008.  It requires insurance companies doing business in South Carolina (with 4 exceptions, below) to cover autism treatments.  It also prohibits insurance companies from refusing to cover someone because that person has autism.

 

Behavioral therapy benefits under Ryan's Law are limited to $50,000 per year.  To be eligible, a child has to be diagnosed by age 8.  Benefits are available to that child until age 16. 

 

To find out whether your insurance company will have to cover your child's autism treatments, you need to talk to your employer.  Ryan's Law applies to all people who are covered by private insurance in South Carolina EXCEPT for these 4 categories:

 

1 - People employed by the federal government and thus covered by Tricare (the military insurance) or one of the FEHBP plans (the federal civilian insurance).

 

2 - People who get their insurance through a self-insured company.  For example, my children are insured through my husband's policy, and my husband is employed by a law firm called Moore & Van Allen.  Moore & Van Allen is a self-insured company, meaning that they pool their money together to insure themselves.  (This gets confusing, because many self-insured companies contract with an insurance company, such as CIGNA or BCBS, to administer their plan.  Thus, you cannot just look at your insurance card to determine if your company is self-insured; you have to ask your employer.)  Typically, only large companies self-insure.

 

3 - People who get insurance through a small group (defined as fewer than 50 people).  Typically, this is small businesses.

 

4 - People who buy individual insurance policies.

 

If you are in any other category, such as a state employee with state insurance, or a employee of a medium-sized company or a large company that does not self-insure, then you should get coverage for autism treatments starting the next time your policy renews (after July 1).

 

FYI, this bill was primarily intended to cover expenses for ABA therapy.  But if you've had problems getting speech or OT covered because, for instance, the insurance company said the therapy was "habilitative" or "educational in nature," Ryan's Law should help with that, too.

SOUTH CAROLINA: Frequently Asked Questions About Ryan’s Law

(Source: Autism Speaks)

 

What does S.C. Code Ann. § 38-71-280 do?

Broadly speaking, S.C. Code Ann. § 38-71-280:

Applies to children diagnosed with autistic spectrum disorder at age 8 or younger and continues to apply up to the age of 16.

Requires most state-regulated group insurance policies to provide coverage for the treatment of autism spectrum disorder as prescribed by the insured’s treating medical doctor in accordance with a treatment plan. Coverage for any care besides behavioral therapy cannot be subject to dollar limits, deductibles, or coinsurance provisions that are less favorable than those that apply to physical illness generally under the health insurance plan. Plans must provide at least $50,000 of coverage per year for behavioral therapy (including applied behavioral analysis).

The specific terms and provisions of this law are described in more detail in this FAQ document.

 
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